Your Guide to Finding Resources after a Cancer Diagnosis

After a cancer diagnosis, individuals can find resources from several reputable sources:

• American Cancer Society (ACS): The American Cancer Society provides comprehensive information on different types of cancer, treatment options, and support services. They recently partnered with the American Society of Clinical Oncology for all of their patient education.
• National Cancer Institute (NCI): The National Cancer Institute offers detailed cancer information, including treatment guidelines, clinical trials, and research updates.
• Cancer Support Community: The Cancer Support Community provides educational materials, support groups, and counseling services for cancer patients and their families.
• Local hospitals and cancer centers: Often have resource centers with pamphlets, brochures, and access to cancer care specialists.
• Online support groups and forums: Websites like CancerCare and Inspire offer online communities where patients can share experiences and find support.
• Patient advocacy groups: Organizations such as Susan G. Komen, Leukemia & Lymphoma Society, and the National Comprehensive Cancer Network provide resources, support services, and educational materials specific to certain types of cancer.

Out-of-pocket costs can be a heavy financial burden for cancer patients and their families.

To find financial resources, start by speaking with your healthcare professional or hospital’s social worker or patient navigator, who can guide you to available support programs.

Here are some starting points:

• American Cancer Society (ACS): Provides a range of services including lodging during treatment, transportation to treatment, and financial assistance for specific needs. The ACS can also guide patients to other financial resources.
• CancerCare: Offers financial assistance for cancer-related costs such as transportation, home care, and childcare. They also provide counseling and support services.
• The Leukemia & Lymphoma Society (LLS): Provides financial support to patients with blood cancers for medical expenses, travel, and copays through various assistance programs.
• Patient Advocate Foundation (PAF): Offers case management services to help patients navigate their insurance and financial challenges, as well as direct financial aid for select expenses.
• HealthWell Foundation: Provides financial assistance to cover costs such as copays, premiums, and out-of-pocket expenses for certain medications and treatments.
• Ronald McDonald House Charities: Offers free or low-cost housing for families of children receiving treatment away from home, along with other support services.
• NeedyMeds: Offers information on patient assistance programs, free or low-cost clinics, and drug discount programs. They also provide direct financial assistance for specific needs.
• Good Days: Provides financial support for medication copays, travel, and insurance premiums for patients with chronic and life-altering diseases, including cancer.
• The Samfund: Offers grants to young adult cancer survivors to help with expenses such as medical bills, living expenses, and continuing education.
• Cancer Financial Assistance Coalition (CFAC): A coalition of organizations that help cancer patients with financial assistance. Their website offers a searchable database of financial resources.
• St. Jude Children’s Research Hospital: Offers financial assistance that covers the cost of treatment, travel, housing, and food for children with cancer and other life-threatening diseases, ensuring families never receive a bill for these services.

During cancer treatment, everyday tasks such as meals, child care, and household chores can become overwhelming. Seeking support allows you to prioritize your recovery and well-being, reducing stress and ensuring you manage your cancer journey effectively.

Here are tips for practical help:

• Contact your healthcare professional: Ask about home nursing services to assist with medical needs at home. Many hospitals have partnerships with home health agencies.
• Reach out to local community organizations: Many offer child care, household help, transportation, and meal delivery services specifically for cancer patients.
• Utilize online resources: Websites and support groups often list local and national resources for practical assistance.
• Check with your insurance: Some health insurance plans cover home care services, transportation to medical appointments, and other supportive services.
• Ask friends and family: Don’t hesitate to ask loved ones for help with everyday tasks. Many people are willing to assist but may not know how to help unless asked.

Emotional support services, both in-person and online, are crucial during cancer as they help manage stress, reduce loneliness, and improve mental well-being. They provide a safe space for sharing experiences, developing coping strategies, and fostering connections with others facing similar challenges.

Some evidence suggests that joining a cancer support group can improve quality of life and survival.

Here are some places to start:

• In-person support groups: Offer invaluable emotional support for cancer patients and their caregivers. These groups can typically be found at hospitals, community centers, churches, and through cancer support organizations.
• Cancer Support Community: Offers a variety of support groups for cancer patients and their families, providing a space to share experiences and receive emotional support.
• CancCare Support Groups: Offers free, professional support groups for cancer patients, caregivers, and the bereaved, led by oncology social workers.
• National Coalition for Cancer Survivorship (NCCS): Provides resources and support for cancer survivors, including emotional support through advocacy and community-building activities.
• MyLifeLine: An online platform offering support groups, personal webpages, and other resources to connect with others and receive emotional support.

If you’re living with cancer, reaching out for support can help make your journey easier and improve your well-being during treatment and recovery. Use the resources around you, stay in touch with your healthcare team, and focus on your overall well-being as you go through this process.